Enormous breakthrough in Cardiff and The Vale


Meeting The Needs Of Migraine Sufferers Across Wales

Migraine Action fight for migraine sufferers in Wales

Back in March 2015 Migraine Action brought Migraine Insight to Cardiff to help as many of the estimated 430,000 migraine sufferers in Wales, receive the right information to help take control of their migraine. With leading experts, Dr Andrew Dowson, Dr Peter Brooks and Dr Mohammed Hassan, the event was a huge success! Many attendees learnt of new treatments and how to manage this debilitating neurological condition. Aimee from Cardiff told Migraine Action "I learnt some game-changing information that has already improved my quality of life. Thank you!"

However, despite receiving this excellent advice from leading experts in the field, it was clear that migraine services provided by the Welsh NHS were just not sufficient in providing what all affected needed and deserved. Migraine Action were surprised by the inconsistent nature of care experienced by people with migraine. Patients in the Betsi Cadwaladr University Health Board areas were being directed to the Walton Centre in Liverpool, with similar examples occurring across the country. Those in the Hywel Dda Health Board being directed by video conference to Morriston Hospital in Swansea! Particularly, Cardiff and the Vale Health Board appeared to be problematic for headache services overall and we were determined to fight this inequality in services.

As part of a study conducted by Migraine Action, 58% of respondents in England had been to see a doctor privately compared to an enormous 72% in Wales! Respondents told us that they had been "referred to a neurologist on NHS but she was less than understanding/interested".

To help all those affected by this neurological condition, on 16th September 2015, Migraine Action took the fight to those who can make the changes so desperately needed, holding an event at the Welsh Assembly. The Migraine Action team along with patients with migraine met with Assembly Members and Special Advisors of the Senedd. Patients were given the opportunity to speak of the difficulties they have experienced in accessing effective treatments in Wales. Fran Kelly, a Migraine Action member, spoke to many of Assembly Members of the high disparity between Wales and London where she used to live. Fran said that she received “excellent care in the Hospital for Neurology and Neurosurgery in London and believe everyone should have access to that level of care regardless of where they live... It truly is despicable that there is a postcode lottery for treatment.” 

Migraine Action in Wales



 


Fran Kelly, a migraine sufferer from Wales, speak to Welsh Assembly Member, Janice Gregory (Welsh Labour) about the impact migraine

 

The Senedd event led to the sharing of some very moving personal experiences and a much greater level understanding of migraine.

 


 

Due to the enormous success of the event we are delighted to announce that Cardiff and the Vale Health Board have agreed to introduce Botox for migraine, despite not having seen any need just two weeks ago! Thank you so much to all those who attended the event and helped us to lobby the Welsh Assembly; with your help we showed how it is so much more than just a headache and the real need for improvement in services for those living with migraine in Wales. With your help we will continue to help all those affected to receive the right treatments and take control of their migraines!

Migraine Action at the Welsh Assembly


 


Janet Finch-Saunders, a Conservative Party politician and Assembly Member for Aberconwy in the National Assembly for Wales, and Simon Evans, the Chief Executive of Migraine Action, speak to a migraine sufferer from North Wales, who has suffered migraines for many years. 



 

 

 

 

 

This is just the beginning of a process. As Dr Peter Brooks from Cardiff said “Dyfal donc a dyr y garreg!” – Constant knocking breaks the stone!

Migraine Action will not be putting the brakes on any time soon, and we are continuing to fight for fair treatments for all across the UK. If you would like to get involved or share your migraine experiences email us at info@migraine.org.uk or call us weekday from 10 am – 4 pm on 08456 011 033.

 

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